罕见病孤儿药门户-Orphanet

**Orphanet** is a reference portal for information on rare diseases and orphan drugs. This portal was created in 1997 and its aim is to help improve the diagnosis, care and treatment of patients with rare diseases. Today, Orphanet is a unique and essential resource that provides constantly updated, high quality and easily accessible information on rare diseases. The main highlights of Orphanet are: * **Comprehensive and regularly updated information**: Orphanet provides information on over 6,000 rare diseases, including their symptoms, diagnosis, treatment, prognosis and genetic information. * **Expert-reviewed content**: All information on Orphanet is written and reviewed by a team of medical experts, ensuring that it is accurate and up-to-date. * **Multilingual**: Orphanet is available in 7 languages (English, French, German, Italian, Spanish, Dutch, Portuguese) to ensure accessibility to users from all over the world. * **Patient-oriented**: Orphanet provides information in a clear and easy-to-understand language, making it accessible to patients and their families. * **International collaboration**: Orphanet is a collaborative effort involving over 300 experts from over 40 countries, ensuring a global perspective on rare diseases.