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遗传和罕见疾病中心

遗传和罕见疾病中心

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GARD 是美国国立卫生研究院 (NIH)提供有关罕见疾病的健康信息中心

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Highlights

The Genetic and Rare Diseases Information Center (GARD) is a national program of the National Institutes of Health (NIH). GARD provides information about rare or genetic diseases to patients, their families, healthcare providers, and the public. GARD's website includes: * Information on over 6,800 rare diseases * A directory of support groups and organizations for rare diseases * A database of clinical trials for rare diseases * A tool to help patients find genetic counselors and other healthcare providers who specialize in rare diseases GARD also offers a variety of educational materials, including fact sheets, brochures, and videos. These materials are available online and in print. GARD is a valuable resource for anyone who is affected by a rare disease. The website provides comprehensive information about rare diseases, as well as support and resources.